Unfortunately, despite the good news on tests, I am not feeling well whatsoever. This seems to be a common problem for me. I feel better when my liver enzymes are high than when they are low. My weakness is the worst when my liver is normal. I can't understand it.
Lately I cannot make it through the day. I am struggling significantly. I fall asleep between 3 and 7 p.m. and then lie in bed for a few hours before falling asleep again for the night. Then for the entire time I'm awake between (morning and noon) I am so tired that I really can't do anything.
The exception to this exhaustion is right after I get an IV of vitamins and glutathione. Throughout the week I take the vitamins orally, but they don't do anything for my energy or symptoms. If I don't do something active after my IV, I feel like I'm wasting it. I've tried just resting after an IV and then it doesn't make it last any longer so I figure I'll take advantage of my one day of energy to get things done and go jogging or for a really long walk. That's one thing I will NOT give up. I am losing so much muscle and weight, that if I stop that weekly walk or jog I will likely be headed toward becoming bedbound.
I am currently trying a new option which consists of two steroids in extremely low physiological doses for adrenal support. As most with Lyme know steroids are VERY risky when you have Lyme and co-infections because of their immune compromising properties. I worry about taking even a low dose although I know a lot of LLMD's use this dose for adrenal support. So far it is not working for energy. I had EXTREME thirst after the first dose and drank a massive amount, but since then I have returned to my normal thirst level along with my normal level of exhaustion and other symptoms.
I hope something turns around for the better soon. I don't know how much longer I can continue to get worse. I'm afraid that soon some of my symptoms will become irreversible.